October 27th, 2007
Sleeping Day
One of the effects of Michel’s illness is that it gives her narcolepsy. I was out most of the afternoon taking Mikey to his music therapy and driving Beth and her friends to the mall. When I finally got back, Michel was asleep standing in the computer room. I was able to get her into a chair in the living room where she is still asleep.
She frequently falls asleep standing or kneeling or sitting or basically where ever she happens to be at the moment that sleep overwhelms her. She sometimes falls asleep in mid-sentence when she is talking to me. She takes medication to help her stay awake but it doesn’t always work. Today has not been a good day for staying awake.









Leah wrote,
Oh Michelle! I have narcolepsy too. Not as bad, but man….that feeling of just not being able to hold your eyes open. I HATE that feeling. When I wake up in the morning one of the first thoughts I have is, “Lets see…if I can make till 10:00 a.m. I can take a nap!” Sometimes I even find myself planning my naps for the next day! UGH!! Provigil DOES help me, (and I get the benefit of a decreased appetite on it.
though I don’t have insurance at the moment so am without it. So today I’m with you, a hard day to stay awake!
I didn’t know that CM can cause Narcolepsy. Something new I learned today!
Link | October 27th, 2007 at 8:10 pm
Tom wrote,
Michel takes Provigil and it helps sometimes. She calls it her wakey-wakey pills. She has had several rough days recently even with the Provigil.
Link | October 27th, 2007 at 11:01 pm
Elbog wrote,
Yikes.
Link | October 28th, 2007 at 1:19 pm
Wifey wrote,
Would u believe I take my wakey-wakey pills (200 mg) twice a day and I can still fall asleep ; )
This is some bizarre trip I am on……….
Link | October 28th, 2007 at 2:34 pm