'Down Syndrome' Category
A Weekend At Camp
Last night we dropped Mikey off at sleep away camp for the weekend. This is the same camp Mikey went to during the summer. They are running weekend camps throughout the off-season so we signed Mikey up for two weekends, this one and again in March. He seemed very excited to be [...]
Medical Care in the US
Elliott Bustamante is an American citizen. He was born at University Medical Center in Tucson on March 14, 2007. Elliott has Down syndrome and was born with a heart defect. But Elliott made two mistakes. First, he was born to parents who are not citizens, although they are legal immigrants. Second, he had no insurance. [...]
McCain-Palin - Advocates?
In her speech at the Republican Convention, Sarah Palin told us that she would be an advocate for the disabled. But where does the McCain-Palin ticket stand?
The research the DSRTF is paying for that may help children with Down syndrome is not being paid for by the US government. The cost of that [...]
31 For 21 Again
Once again, it is time for the 31 for 21 Challenge. Tricia, the mom of Georgia, and blogger over at Unringing the Bell, created the challenge last year. The rules of the challenge are fairly simple… blog every day for the entire month of October in salute to Down syndrome Awareness Month. [...]
Leah and Stephanie
Yesterday was the NYC Buddy Walk and since we knew that there would be a few special guests Michel and I went into Manhattan. Stephanie and her gang had come in from Pennsylvania and two very special guests, Leah and Angela had come all the way in from Minnesota. We met them at [...]
DSRTF
Friday night, Michel and I went into Manhattan to a cocktail party and presentation of current research sponsored by the Down Syndrome Research and Treatment Foundation. Dr. Lynn Nadel discussed the research he is doing and how the DSRTF is making it possible.
Dr. Michael Harpold, Chief Executive Officer of DSRTF, started by speaking about [...]Off To Camp
Mikey started sleep-away camp today. This is a chance for Mikey to have a week of fun and adventure and for us to have a week to catch our breath to help us be better parents for Mikey. This is his first time at this camp so we were a little worried at how Mikey [...]
Stupid Movies
Writer and academic Steve Gorelick has a great blog entry about the movie, “Taming Thunder.”
Thoughts on the Conference
So far the best part of the conference has been meeting everyone. We got Beth off to the Brothers & Sisters conference but it wasn’t easy. We were a bit late and the group had moved to a different hotel. So we walked the couple of blocks to that hotel and we [...]
Off to Boston
Tomorrow is the day we are off to Boston for the 36th annual NDSC convention. We are going to be meeting a lot of people from our site so that should be fun. Beth will be attending the Siblings Workshop so we won’t see her much on Saturday or Sunday. The only [...]
