'Down Syndrome' Category
I don’t have Down syndrome all the time
Qadoshyah, one of the members of the downsyn.com forum, passed this along from an article she had read. This is from Dave Hingsburger’s blog. We’d just sat down for lunch when we both heard that pronunciation of the word, ‘Mother’ that communicates so much. ‘Muhhhhh-therrrrrr’. I glanced up and saw a frustrated and harried woman, [...]
Sarah Palin Please Shut Up
If you look to the upper right of this page, you will see that we are fighting against the use of the R-Word. For those who don’t know, that word is “retard” and it is offensive to those of us who love someone with a mental disability. Back in August, White House Chief of Staff [...]
Read This
I haven’t been writing in awhile because… well… I really don’t have a reason. But I’m going to start up again. Meanwhile everyone needs to read this article: “Defending the word ‘retard’ is not heroic” By Michael Gerson Discuss.
Mikey Losing Weight
Since May, Mikey has been losing weight like crazy. The little guy was never heavy but he has lost 17 lbs. (down to 70 lbs) so now he is like a stick figure. We have been going nuts trying to figure out why this is happening. We took him off the Risdperdal which increases appetite [...]
Happy Birthday Mikey
Mikey turned 12 on April 11th. We had a party at Michel’s sister, Eileen’s house on Easter Sunday. Mikey was pretty good and enjoyed playing with his cousins. I can’t believe that Mikey is in his last year before turning into a teenager. He still seems like my little boy.
About Life
When I started downsyn.com, I had no idea how much it would grow. When Mikey was born I knew very little about Down syndrome. I created the site as a way to document the research I was doing on Down syndrome. After I created the site, I received many emails thanking me for providing information [...]
Dogs!
I mentioned in my earlier entry that we have dogs. On Thursday Michel brought home two dogs from the pound. This is the first dog. Her name is either Dr. Cane Cain or Bagles depending on who you ask. She is a pure bred beagle and is about 3 years old. Michel and Beth fell [...]
A Weekend At Camp
Last night we dropped Mikey off at sleep away camp for the weekend. This is the same camp Mikey went to during the summer. They are running weekend camps throughout the off-season so we signed Mikey up for two weekends, this one and again in March. He seemed very excited to be there running around [...]
Medical Care in the US
Elliott Bustamante is an American citizen. He was born at University Medical Center in Tucson on March 14, 2007. Elliott has Down syndrome and was born with a heart defect. But Elliott made two mistakes. First, he was born to parents who are not citizens, although they are legal immigrants. Second, he had no insurance. [...]
McCain-Palin – Advocates?
In her speech at the Republican Convention, Sarah Palin told us that she would be an advocate for the disabled. But where does the McCain-Palin ticket stand? The research the DSRTF is paying for that may help children with Down syndrome is not being paid for by the US government. The cost of that research? [...]
