'Down Syndrome' Category
31 For 21 Again
Once again, it is time for the 31 for 21 Challenge. Tricia, the mom of Georgia, and blogger over at Unringing the Bell, created the challenge last year. The rules of the challenge are fairly simple… blog every day for the entire month of October in salute to Down syndrome Awareness Month. Your blogs don’t [...]
Leah and Stephanie
Yesterday was the NYC Buddy Walk and since we knew that there would be a few special guests Michel and I went into Manhattan. Stephanie and her gang had come in from Pennsylvania and two very special guests, Leah and Angela had come all the way in from Minnesota. We met them at the cross [...]
DSRTF
Friday night, Michel and I went into Manhattan to a cocktail party and presentation of current research sponsored by the Down Syndrome Research and Treatment Foundation. Dr. Lynn Nadel discussed the research he is doing and how the DSRTF is making it possible. Dr. Michael Harpold, Chief Executive Officer of DSRTF, started by speaking about [...]
Off To Camp
Mikey started sleep-away camp today. This is a chance for Mikey to have a week of fun and adventure and for us to have a week to catch our breath to help us be better parents for Mikey. This is his first time at this camp so we were a little worried at how Mikey [...]
Stupid Movies
Writer and academic Steve Gorelick has a great blog entry about the movie, “Taming Thunder.”
Thoughts on the Conference
So far the best part of the conference has been meeting everyone. We got Beth off to the Brothers & Sisters conference but it wasn’t easy. We were a bit late and the group had moved to a different hotel. So we walked the couple of blocks to that hotel and we were sent to [...]
Off to Boston
Tomorrow is the day we are off to Boston for the 36th annual NDSC convention. We are going to be meeting a lot of people from our site so that should be fun. Beth will be attending the Siblings Workshop so we won’t see her much on Saturday or Sunday. The only thing I worry [...]
A Troll Under the Bridge
For a few months we have had a woman on our down sydrome forum who has been discussing her newborn child. The baby was born premature with all sorts of issues and we were recenetly told that she had cancer. Several members of our forum doubted her story… some from the beginning and others with [...]
Friendship and Innocence
Because of Mikey’s autism he has difficulties making friends. Although he can develop relationships, they aren’t friendships in the sense we think of friendship. But Mikey does have one real friend. His name is Joey and he also has Down syndrome. Mikey and Joey attend the same socialization program (this is a program to help [...]
Ungrateful Greyhounds
With Lily gone, Michel and I were thinking about getting another dog. We had been at PETCO with Mikey recently and a bunch of people who had rescued greyhounds through Grateful Greyhound were there along with their greyhounds. They told us that greyhounds were bred for dog racing and when their career was over, they [...]
