'Down Syndrome' Category
Karen Gaffney
On April 11th, which also happened to be Mikey’s birthday, I went to C. W. Post College for a conference on Down syndrome. Most of the conference was aimed at educators rather than parents so it wasn’t too useful. However, the keynote speaker was Karen Gaffney, a young woman with Down syndrome. Ms. Gaffney absolutely [...]
Melissa Riggio
Melissa Riggio was the daughter of the Barnes and Noble CEO. She also had Down syndrome. Melissa died of leukemia this week at the age of 20. Melissa was a song writer and author. She wrote an article for National Geographic Kids titled, I Have Down Syndrome—Know Me Before You Judge Me. The Down syndrome [...]
Plainview-Old Bethpage School District
We recently received a note from Beth’s High School detailing her recent absences. At the bottom of the page was a list of codes used by the report such S=Susp, C=Cut, etc. Notice the one that is circled in the excerpt above. R=ETard??? I’m sorry but there is no way you are going to convince [...]
31 for 21 is Over
I managed to do it! The Get it Down: 31 For 21 Challenge is over and I managed to blog every single day in October. Which brings up the NaBloPoMo challenge. But I think I’ll pass on that one.
21 Things – Part 4
The last six things about Mikey: Mikey thinks burping is hysterical. He likes to poke his finger into his chest and make a fake burping noise. He expects that you will do the same if he pushes his finger into your chest. Mikey is very ticklish especially on his neck. He sometimes asks me to [...]
21 Things – Part 3
Five more things about Mikey: Mikey doesn’t like the stairs at home. He will not go up more than four or five steps on our stairs. When I took him to Molloy College, he had no problem going up and down the stairs but at home it is totally different. He will go down the [...]
The children were meant to be
A few months ago, my friend Stephanie, who I met through downsyn.com, sent me an email about an article in the Bucks County Courier Times. For some reason, the email got pushed to the side and I never read the article… until today. I was cleaning up my gmail account and found this email and [...]
21 Things – Part 2
Five more things about Mikey: Mikey likes to assign seats to people. When we sit at the dinner table everyone has to sit where Mikey tells them. He will also drag everyone into the family room and tell us where to sit. After a minute, he will make everyone move. He thinks it is a [...]
21 Things About Mikey
One of the memes floating around for 31 For 21 is the 21 things meme. So I am going to tell you 21 things about Mikey. We’ll start with five today. Mikey hates having his picture taken. He will be laughing or smiling but as soon as he sees me take out the camera he [...]
Mikey Stimming
This is about 30 seconds of video showing Mikey’s stimming behavior. Now you know how he stays so thin!
